
NIH to fund unproven ALS drugs under patient-backed law
WASHINGTON (AP) — When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay? Responsibility for funding socalled compassionate use has always fallen to drugmakers, though many are unwilling or unable to make their drugs available for free to dying patients. After years of lobbying Congress, patients with the debilitating illness known as Lou Gehrig’s disease have found an unprecedented solution: make the federal government pay.