This photo provided by ALS patient Brian Wallach shows him and his wife, Sandra Abrevaya, at their home in Chicago on May 2021. Wallach, who formed I AM ALS with Abrevaya after being diagnosed with ALS in 2017, spent years working on legislation with congressional staffers, researchers and patients which passed the House last December in a landslide 423-3 vote. (Julie Dietz via AP)
Matthew Perrone AP Health Writer WASHINGTON (AP) — When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs,…